Posted on February 19th, 2012
Walking along the beach, biking along the coast, coffee dates with friends, shopping, playing a hilarious Taboo-like game with friends, these are a few of my favorite things. (Thanks for the inspiration Maria!) But when the dog bites, it really bites with chemo. Okay, enough of the sound of music analogy, but you know what I mean. I have honestly had a really rough past couple of weeks and I would love your prayers for peace, joy and perseverance. As I was writing my check-in email with my doctor today, I thought, maybe I should just copy and paste this thing to the blog so that you can get a feel for how I communicate with my lovely MD. This email is much more personal and emotional than normal- because well, that’s just who I am and where I’m at right now.
Hi Dr. Cho-Phan,
How are you? I’m not sure where to start with how how this round of chemo has been on me. I want to stay positive and be a fighter, but this round has really torn me down emotionally, mainly because of the nausea. The day of the infusion (2 weeks ago tomorrow) was pretty horrible. I was doing fine until the Oxaliplatin started in the IV, and then almost immediately I had this sick, nauseas feeling and it literally felt like a cold poison was pulsing through my body. I actually had tears rolling down my face for most of the 3 hours. 🙁 The cold on my arm (at my IV location) was so bad that thinking about it or looking at it made me more nauseas, and this was the first time that I actaully thought I might throw-up in the ITA. Though the nausea was obviously worse then the past infusions I thought that maybe this was because I had had a break from the chemo and my body was having to re-adjust to the “assault” of chemo on my system However the nausea that I have continued to experience throughout the past two weeks has made me curious. I was also wondering if the healing in my colon and liver effected how much nausea I experienced? What are you thoughts on this?The past two weeks, (while I’ve been taking the Xeloda-pill form of chemo) have been really rough as well. I have had to take the Zofran and Ativan around the clock just to function. The problem with this solution is that the Ativan makes me so tired that I totally crash around 3pm each day. I also tried acupuncture, only once, the day after the infusion, and while it felt good while I was there, the 15minute drive there just really flared up the nausea. I’m still trying to decide if it should give that more of a try.I also wanted to tell you that I have been a lot more emotional over the past two weeks. I have been pretty down and have cried every day, which is not normal at all for me. I was wondering if this could have something to do with the drugs, or it might be that combined with the fact that just when I started feeling better from surgery, I felt totally knocked down again for 2 weeks (longer than I thought) from the chemo. This has just been so hard as I think about having three more rounds.(some talk about my meds)….I truly want to fight this and get through this, but my spirits are low and I think part of that is just that the surgery has already happened, so its hard to believe that I still need chemo. I guess its not hard to believe, because I totally understand needing to get any microscopic cancer cells, its just harder to face, especially as I’m realizing that my body and my spirit are experiencing the cumulative effects of drugs and the emotions and life hindrances that come with them.
Our top 5 favorites, in no particular order- Drumroll Please…..
- Veggie Lasagna (EVEN with all of the veggies peeled for my sensitive tummy)- SO GOOD!
- 2 Types of homemade Chicken Noodle Soup and the best darn cornbread I’ve ever had! (This soup really got me through the first few days!)
- Butternut Squash/Goat Cheese /Whole wheat Pizza with Home- Brewed Beer (J was in heaven)
- Grilled veggies/ chicken and whole wheat chocolate chip cookies for dessert!! (and an adorable red and white poke-dot travel mug for my growing green tea habit)
- Homemade soups… yum! Potato soup, Carrot Potato Soup…. they warm the soul.
- Thank you Jesus, Grandma Penny is feeling much better after her bout with pneumonia and has had some much needed rest!
- Thank you Jesus, I got to do some work over the past couple of weeks and even got to see some of the bright and encouraging faces of our community at VFC today!
- Thank you Jesus, that I can now lift Brenden and all of my surgical incisions look great! (I had my 6-week post surgery mark this Wed.)
- Please pray for relief from my nausea
- Please pray for complete wisdom for my chemo doctor as she decides what to do about my nausea
- Please pray for Josh- he has been pretty overwhelmed with all of life lately- especially when he has to come home from work late and jump right in with the kiddos while I fall into bed- He is a rock star in all he does, it just wears on him and he really needs some bike rides and hearty laughs for stress relief- please pray that we can find time for those.